What should have control heart of our baby is finally the beginning of our nightmare.
At almost six months pregnant, I learn that the heart of Louis did not develloped normally. He is suffering from congenital heart disease (heart disease acquired during pregnancy). The first diagnosis that we were given that day was "bicuspid aortic valve. In short, this is a defect in the aortic cusp. This is normally composed of three layers or "cusp" that open and close the passage of blood into the aorta. In the case of Louis, this valve has only two layers. This means that to be effective, the heart must pump more pounds and that this valve will age faster.
It will therefore make a day just in the present state of things we do not know if it will be in the early years of his life or the next 20, 30, 40 ...
is a stairway to hell opens that day under our feet ... It will take several weeks to regain our strength and our hope: to believe and accept to fight for the future of Louis.
Pregnancy is now closely monitored and visits to hospital are increasing Jacques Cartier in Massy. The week before our wedding, the pediatric cardiologist we learn that Louis can not live if that is not done at birth and will therefore have to induce labor early July ...
few more steps towards nothingness and a backpack heavier and heavier ... Try not to turn around, stop thinking about what we would have liked to live for the first pregnancy, but accept that the only chance of life for Louis will be open heart surgery ... try ...
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