Thursday, October 1, 2009

Good Bible Verse For Housewarming

News.

Today we are (again!!) Returned to Ste-Justine. The CLSC nurse who comes twice a week to weigh Lia phoned yesterday to Ste-Justine, because she was full of secretions. Then the pediatrician gave me an appointment.
It begins by telling me that she said it would not be secrets, but an overflow of saliva that my daughter could not swallow because it is hypothonique, dysphagia, bla bla bla ..... come on, press the knife!
Then she looks at the results of X-ray of the lungs that we spent Sunday during a visit to an emergency (secretions yet!). She found that the esophagus Lia seemed distended. So she joined the surgeon who says he wants Lia pass a test to see if the famous secretions and the small stuff to the esophagus is not due to opéaration of-way valve. So
result of the examination? The anti-reflux valve is tight !!!!! Ostia! (Sorry) Usually children swallow their secretions Lia ... but those do not go through lack of space!
We must return to ste justine next Tuesday they are trying, with a balloon, a little of the ENLARGE-way valve. So we are still hospitalized for at least 24 hours. All because of a stupid mistake! ; Usually, during this operation they pose a tube and make the valve around the tube. And good for him Lia they left the feeding tube for the operation, and it is much smaller than they usually use.
Then we reviewed the ENT who did another small exam ..... tell me again that a little Lia has stridor do .... and that is surely due to its hypothonie .... everything is softer!

Yeah, I know! I'm just tired of repeating myself to do ..... my daughter almost 4 months and she does not even begin to hold its head. So yes, I know my daughter is different ..... and ste-justine they love us back!

Wednesday, September 30, 2009

Does Alcohol Kill Throat



We're back at home since Friday, after 5 weeks in hospital. We have several appointments set .... no respite for friends! (
Lia is full of secretions. It's really stressful, it chokes with it. ..... It worries me a lot so I always keep an eye on it and she sleeps in our bed.
At the genetic level they did a test to see if it has not Rett syndrome ..... and I can tell you that I do not want my daughter to have this disease! (
On a happier note:
We are thinking hard for us to buy a new house. We need a positive project for us to occupy the mind and not think too much about the future. We thought we travel a lot with Lia, but travel and feeding ..... not easy! So we sell our house for us to buy new!
Someone is looking for a small house in the corner of Laval? P I'm back with more news! The time I miss a little, Lia is a baby in arms!


Friday, September 18, 2009

Free Spectral Tiger 2010

New Lia

You remember I told you that Lia was supposed to have surgery Sept. 22 to one-way valve and a button for his gastro-gastric stoma to be stuffed with a belly button.
Well Wednesday night they came to see me and told me that the transaction would be the next day! Ouffff! What a surprise! So on Thursday my casserole
entered the operating room at 10:00 am. An operation that lasted about 3h00. Finally at 12:30 they came to see us to say that everything went well and Lia was leaving the recovery room. She remained there three hours! I can tell you that I, were distraught at the end!
So we came up with the pot to her room around 15:30 on the first floor surgery. She desaturation a few times when she opened her eyes. I was pretty worried. I spent the night with her in the hospital. She slept a lot during the night but needed oxygen a few times.
Today she still slept much and when she woke up she became nauseated and went out a lot of secretions from his throat. It must be said that for more than 24 hours they have put him a tube to empty his stomach of all secretions.
Tonight they took away the tube ..... and for the first time my daughter has no tube in the nose!

Here are photos: