Monday, November 23, 2009

Sonicare For Two People



One is always at the same stage. Lia is still intubated, still seizures with respiratory arrest. A video taken by my dad who came to visit him.




Thursday, November 12, 2009

How To Build Truck Side Rails

My beautiful love with his hit.


I put this picture because my daughter, I love it. It is the most beautiful in my eyes, with or without the tube.

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suite .... not very happy.

Following the last post, Lia has risen to the floor. On Sunday she had a convulsion in status (continuous). They gave him the dilentin to stop the crisis, but it did not work. Then they gave him the ativan and this time the crisis ceased immediately. By cons they took her to intensive care for monitoring. She made several small seizures but she was relatively well all week. They told us they date back to the floor on weekends. Saturday she made several small attacks, so they decided to keep looking to see it. And Sunday ..... ..... pafff respiratory arrest in the morning, code blue. Thereafter it is exhausted. In PM I take it to the rock .... stop breathing in my arms. They had to break down the back, I was terrified. After she seemed better. Around 19:00 we left for home. At 20.00 I call, all is well. At 21:00 the phone rings. Lia made two stops breathing and difficulty up the slope. They have to intubate. We arrive at Ste-Justine just over 30 minutes later and she is calm and intubated. They will return home for the night.
She made one to two stops breathing every day due to convulsions. We met with physicians and their game plan is to play with drugs. Finding the right medication to control his epilepsy ..... or at least the most serious: respiratory arrest. For now and some days it will remain intubated. I know in the ICU is well monitored. But my heart is afraid of Mom!
For how much longer I will have the right to see my daughter and I love him?? (Lia

my love ..... you gotta fight! William and Loik, watch over your little sister I beg you! Help her to get better! I love you so much too.